Osnovna obeležja strukture sredinskih faktora koji su značajni za participaciju dece s cerebralnom paralizom u kućnom okruženju

Milena Milićević

doi:10.47152/ziksi20170345

Authors

Milena Milićević Institute of Criminological and Sociological Research, Belgrade, Serbia https://orcid.org/0000-0001-8344-5504

DOI:

https://doi.org/10.47152/ziksi20170345

Keywords:

home environment, barriers, facilitators, involvement, cerebral palsy

Abstract

This paper examines the basic characteristics of the structure of environmental factors that are significant for participation in the home environment of children with cerebral palsy as compared to children with typical development. The sample included 110 participants with cerebral palsy and 134 participants with typical development. The Home Environment Section of the Participation and Environment Measure for Children and Youth – PEM-CY (Coster, Law and Bedell, 2010) was used. By comparing these structures, it was confirmed that there were more barriers and fewer facilitators, followed by lower total environmental supportiveness, and a smaller percentage of resources available and/or appropriate in the home environment of participants with cerebral palsy. Each part of the environmental structure had an independent and unique contribution to explaining of statistical differences between groups, while the strongest predictors was a number of barriers. By reducing the number of barriers, or eliminating the aggravating influence of environmental factors, while increasing the facilitating role at the same time, it is possible to integrate the support of the environment and the participatory potential of children from this population.

References

Anaby, D., Law, M., Coster, W., Bedell, G., Khetani, M., Avery, L., & Teplicky, R. (2014). The mediating role of the environment in explaining participation of children and youth with and without disabilities across home, school, and community. Archives of Physical Medicine and Rehabilitation, 95(5), 908–917. DOI: https://doi.org/10.1016/j.apmr.2014.01.005

Axelsson, A. K. (2014). Children with profound intellectual and multiple disabilities and their participation in family activities (Doctoral dissertation). School of Health Sciences, Jönköping University.

Batorowicz, B., Campbell, F., von Tetzchner, S., King, G., & Missiuna, C. (2014). Social participation of school-aged children who use communication aids: The views of children and parents. Augmentative and Alternative Communication, 30(3), 237–251. DOI: https://doi.org/10.3109/07434618.2014.940464

Bedell, G. M., Cohn, E. S., & Dumas, H. M. (2005). Exploring parents’ use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3), 273–284. DOI: https://doi.org/10.5014/ajot.59.3.273

Bulić, D., Joković Oreb, I., & Nikolić, B. (2012). Angažman majki djece s teškoćama u razvoju u aktivnostima svakodnevnog života. Hrvatska revija za rehabilitacijska istraživanja, 48(2), 1–12.

Colver, A., Thyen, U., Arnaud, C., Beckung, E., Fauconnier, J., Marcelli, M., McManus, V., Michelsen, S. I., Parkes, J., Parkinson, K., & Dickinson, H. O. (2012). Association between participation in life situations of children with cerebral palsy and their physical, social, and attitudinal environment: A cross-sectional multicenter European study. Archives of Physical Medicine and Rehabilitation, 93(12), 2154–2164. DOI: https://doi.org/10.1016/j.apmr.2012.07.011

Coster, W., Bedell, G., Law, M., Khetani, M. A., Teplicky, R., Liljenquist, K., Gleason, K., & Kao, Y.-C. (2011). Psychometric evaluation of the participation and environment measure for children and youth. Developmental Medicine & Child Neurology, 53(11), 1030–1037. DOI: https://doi.org/10.1111/j.1469-8749.2011.04094.x

Coster, W., Law, M., & Bedell, G. (2010). Participation and environment measure for children and youth. Boston University.

Coster, W., Law, M., Bedell, G., Khetani, M., Cousins, M., & Teplicky, R. (2012). Development of the participation and environment measure for children and youth: Conceptual basis. Disability and Rehabilitation, 34(3), 238–246. DOI: https://doi.org/10.3109/09638288.2011.603017

Hansen, A. M., Siame, M., & van der Veen, J. (2013). A qualitative study: Barriers and support for participation for children with disabilities. African Journal of Disability, 3(1), 1–9. DOI: https://doi.org/10.4102/ajod.v3i1.112

King, G., Law, M., Hanna, S., King, S., Hurley, P., Rosenbaum, P., Kertoy, M., & Petrenchik, T. (2006). Predictors of the leisure and recreation participation of children with physical disabilities: A structural equation modeling analysis. Children’s Health Care, 35(3), 209–234. DOI: https://doi.org/10.1207/s15326888chc3503_2

King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K., & Young, N. L. (2003). A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Physical & Occupational Therapy in Pediatrics, 23(1), 63–90. DOI: https://doi.org/10.1080/J006v23n01_05

Lakens, D. (2013). Calculating and reporting effect sizes to facilitate cumulative science: A practical primer for t-tests and ANOVAs. Frontiers in Psychology, 4, 863. DOI: https://doi.org/10.3389/fpsyg.2013.00863

Law, M., Anaby, D., Teplicky, R., Khetani, M. A., Coster, W., & Bedell, G. (2013). Participation in the home environment among children and youth with and without disabilities. British Journal of Occupational Therapy, 76(2), 58–66. DOI: https://doi.org/10.4276/030802213X13603244419112

Lawlor, K., Mihaylov, S., Welsh, B., Jarvis, S., & Colver, A. (2006). A qualitative study of the physical, social and attitudinal environments influencing the participation of children with cerebral palsy in northeast England. Pediatric Rehabilitation, 9(3), 219–228. DOI: https://doi.org/10.1080/13638490500235649

Longo, E., Badia, M., & Orgaz, B. M. (2013). Patterns and predictors of participation in leisure activities outside of school in children and adolescents with cerebral palsy. Research in Developmental Disabilities, 34(1), 266–275. DOI: https://doi.org/10.1016/j.ridd.2012.08.017

Mei, C., Reilly, S., Reddihough, D., Mensah, F., Green, J., Pennington, L., & Morgan, A. T. (2015). Activities and participation of children with cerebral palsy: Parent perspectives. Disability and Rehabilitation, 37(23), 2164–2173. DOI: https://doi.org/10.3109/09638288.2014.999164

McConachie, H., Colver, A. F., Forsyth, R. J., Jarvis, S. N., & Parkinson, K. N. (2006). Participation of disabled children: How should it be characterised and measured? Disability and Rehabilitation, 28(18), 1157–1164. DOI: https://doi.org/10.1080/09638280500534507

Nedović, G., Rapaić, D., Odović, G., Potić, S., & Milićević, M. (2012). Socijalna participacija osoba sa invaliditetom. Društvo defektologa Srbije.

Radulović, D., Arežina, T., Đuričić, Z., Bošković, M., & Velašević, J. (2014). Participacija školske dece sa cerebralnom paralizom u aktivnostima kod kuće, u školi i u zajednici. In Zbornik radova 14. kongresa fizijatara Srbije sa međunarodnim učešćem „Timski rad u rehabilitaciji“ (pp. 100–101). Udruženje fizijatara Srbije.

Raymore, L. A. (2002). Facilitators to leisure. Journal of Leisure Research, 37–51. DOI: https://doi.org/10.1080/00222216.2002.11949959

Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., Dan, B., & Jacobsson, B. (2007). A report: The definition and classification of cerebral palsy April 2006. Developmental Medicine & Child Neurology, 49(Suppl. 109), 8–14.

Rouquette, A., Badley, E. M., Falissard, B., Dub, T., Leplege, A., & Coste, J. (2015). Moderators, mediators, and bidirectional relationships in the International Classification of Functioning, Disability and Health (ICF) framework: An empirical investigation using a longitudinal design and structural equation modeling (SEM). Social Science & Medicine, 135, 133–142. DOI: https://doi.org/10.1016/j.socscimed.2015.05.007

Schneidert, M., Hurst, R., Miller, J., & Ustün, B. (2003). The role of environment in the International Classification of Functioning, Disability and Health (ICF). Disability and Rehabilitation, 25(11–12), 588–595. DOI: https://doi.org/10.1080/0963828031000137090

Shikako-Thomas, K., Majnemer, A., Law, M., & Lach, L. (2008). Determinants of participation in leisure activities in children and youth with cerebral palsy: Systematic review. Physical & Occupational Therapy in Pediatrics, 28(2), 155–169. DOI: https://doi.org/10.1080/01942630802031834

Simeonsson, R. J., Carlson, D., Huntington, G. S., McMillen, J. S., & Brent, J. L. (2001). Students with disabilities: A national survey of participation in school activities. Disability and Rehabilitation, 23(2), 49–63. DOI: https://doi.org/10.1080/096382801750058134

Simeonsson, R. J., Leonardi, M., Lollar, D., Bjorck-Akesson, E., Hollenweger, J., & Martinuzzi, A. (2003). Applying the International Classification of Functioning, Disability and Health (ICF) to measure childhood disability. Disability and Rehabilitation, 25(11–12), 602–610. DOI: https://doi.org/10.1080/0963828031000137117

Tadema, A. C., Vlaskamp, C., & Fonteine, H. (2006). The time and effort in taking care for children with profound and multiple disabilities: A study on care load. Journal of Applied Research in Intellectual Disabilities, 19(3), 261–266.

White, D., & Korotayev, A. (2004). Statistical analysis of cross-tabs (Chapter 5).

World Health Organization. (2001). International classification of functioning, disability and health (ICF).

World Health Organization. (2007). International classification of functioning, disability and health: Children and youth version (ICF-CY).

World Health Organization. (2011). World report on disability 2011. American Journal of Physical Medicine & Rehabilitation, 91, 549. DOI: https://doi.org/10.1097/PHM.0b013e318255982e

World Health Organization. (2013). How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and Health (ICF).